Global Genes™, in partnership with Orphan Drug Solutions, is pleased to announce the inaugural DENIM Dash 5K Run/Walk for Rare Disease. This innovative event invites everyone around the globe to participate in a 3.1-mile virtual race to raise awareness for rare disease. The virtual event gives participants the flexibility to run, jog or walk anywhere and anytime March 21 – 29 in support of the patients, family and friends of the rare disease community.
Participants are encouraged to use map and active lifestyle applications to find their own optimum 3.1-mile route. Through apps and social media using #DENIMDash2015, participants will be able to share their race plans and progress with other event participants and members of the rare disease community around the globe.
Funds raised by the DENIM Dash 5k will further enrich and sustain the educational programs developed by Global Genes. “Rare diseases affect 1 in 10 Americans and 350 million people globally,” commented Nicole Boice, Founder and CEO of Global Genes. “ So we wanted to plan a virtual event that would be easy and convenient to participate in, while raising awareness around the world. We are hoping runners will be creative, make it fun and get their friends involved! This will be a simple way to show support for this community in need and have fun doing it.”
Participants can run solo or maximize their fundraising impact by forming a team or having friends and family sponsor their run. The DENIM Dash registration fee is $35 and sponsorship donations can be made per mile or for the total race with no minimum contribution required.
Register by March 6, 2015 to receive a complimentary DENIM Dash race t-shirt. Each registrant will receive a race packet with a race bib and Blue Genes Denim Ribbon™ to wear during the race. Registration is currently open at https://givehope.globalgenes.org/denimdash5k. DENIM Dash inquiries can be directed to contact@globalgenes.org. For more information on Global Genes and to get involved in the rare disease community please visit www.globalgenes.org.
